If you are a big blog reader like I am, chances are you've come across Patrice's blog about her sweet little boy, Jonah. Jonah was born with a rare skin condition called Epidermolysis Bullosa (or EB) where his skin blisters and come off when ever he is touched or bumped. The boys I used to nanny for are just two weeks older than him so I know how hard little boys can be on their bodies and can't imagine the dichotomy of wanting to let them play but being fearful of them getting hurt. They spend hours each day washing him and bandaging him up so he can play and live as normally as possible. It must be so hard to live with, but he and his family do their best and always trust in God. It's a great reminder, especially now that I have a son, to praise God no matter what comes your way, and to truly be thankful for what He's given you.
Jonah is turning three shortly and his family and friends are hosting the 3rd annual Jonah's EB Auction. All the proceeds go directly to DebRA to fund research to find a cure. since I've been reading about Jonah for so long, I decided to donate a quilt this year! I'm really excited about it and hope it raises a lot of money and that it goes to a home where it can be loved to pieces. :)
It's a little boy quilt with cars and robot fabric, mostly from Alexander Henry's "Beep Beep" line. Go check it out and please bid on it!
Thanks friends!
Brittany
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